About Lyme Chick

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Maisie McInerney is an advocate and awareness activist for Chronic Lyme Disease. Diagnosed in January of 2010, she wasted no time in sharing her struggles and connecting with fellow fighters. She began her blog, Lyme Chick, in the hopes of giving patients of Lyme what she didn’t have when she was first diagnosed: a community of understanding, loving peers going through the same mystifying illness. And some idea of what to expect with this diagnoses as well as practical advice. Lyme Chick has grown into a community of 11,000+ people, and Maisie has used her voice to advocate & connect with patients across the country.

In 2010 she was the recipient of The Turn the Corner Courage Award and The 2010 Top Health Blogger for Wellsphere. In 2011 she won HealthCentral’s “This is Me” video contest for her video on Chronic Lyme. She was also a WEGOHealth Health Activist Award Finalist in 2011, 2012, and 2013. In 2012 Maisie completed her 200 hour certification to teach yoga. When she fully heals, she plans to teach yoga to chronically ill patients as a therapeutic healing method to complement patient’s current treatments.

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20 Responses to About Lyme Chick

  1. Ryan Slicer says:

    Awesome blog! I’ve been thinking of doing something like this myself or starting a youtube channel and posting videos. Vlogging may require more effort than I’ve got though so maybe I’ll stick to a blog or Twitter. Good luck in your battle against Lyme!

    Ryan (lymeslice)

  2. Jayne says:

    I came across your site today and being a fellow lyme chick also, I had to check it out. I too, have kept a treatment journal which I, too, started after finally diagnosed correctly in January 2010 as well with Lymes and co infections tagging along with all the other stuff. It is nice to see that I am not alone in the puke/sick/bed life as you describe. I too should have an Oscar for my acting my way through the pain to those I see. Big mistake, and now am trying to be true to myself and let people see how bad this really is, I don’t have to smile for everyone, I hurt. Keep going and keep writing it down, it may be worth the effort to someone else along the way. It helped me today and brought a real smile in meeting a lyme friend through the blog. One day the medical field may “get it” and support ‘us’. Best to you in 2011.

  3. Lyme Chick says:

    Hi Jayne! I’m so glad you could relate! You are definitely not alone in this battle! Thank you so much for your comment, and I hope 2011 brings your nothing but health and happiness.

    XOXO

  4. marblenose says:

    Hi Lyme Chick,
    You are the first person I have heard of with Chiari ,as well as Chronic Lyme. In fact, that is what the docs first thought was the problem. I went undiagnosed with Lyme for 10 years and have been suffering the consequences ever since. Been on anbx for years, IV three times to no avail. I am currently on a break from anbx.
    Life on life’s terms is tough. I am lucky enough to work out of my home. I love my job. But life is work and rest…that’s it! My goal this year is to try to create a social life for myself.
    I have a fabulous Dr. outside of NYC. I am happy to share it privately.
    Be well. Have fun. Keep blogging!
    Blessings,
    Marblenose

  5. Sue says:

    Hi Lyme Chick,

    I hope you are well. Getting over lyme is quite a journey, but I feel I have successfully done that. I had to think way outside the box to get my good results. It is believed by one doctor that I had my lyme for 28 years, with my major symptom being migraine headaches. I did get Bells Palsy at that time and it is hypothesized that that was the first event. Although I can’t be sure that this was true for me, I did in fact have three blood tests starting in June 2009 that indicated I did indeed have lyme. For several reasons, I decided to treat myself naturally, with the guidance of a naturopath. I was able to overcome all my symptoms within a short period of time (5 – 9 months). I no longer have ANY problem areas I am trying to resolve. It’s been 17 months without a headache. That is fantastic to me, because I suffered with them every 3 – 5 weeks apart, for 27+ years. I also developed frozen shoulder because of the lyme. I had 0 – 10% range of motion in my right arm. That took the longest to come back but it did, all the way to 100% and I did it without cortisone shots or surgery.

    Don’t give up. It takes dedication, but you can clean your body out, and nourish it with good/non-GMO/organic food. With a strong immune system, you should be able to heal from any thing. It took a lot of detoxing herbs, Essiac tea, organic supplements, organic foods, a rife machine, energy treatments and so much more, but it was so worth it.

    I recently came across a group of people that are truly helping people heal from chronic lyme as well as other chronic conditions. I highly recommend you visit http://www.advancedcelltraining.com. You will be amazed at the testimonials on Facebook too. Good luck to you all.

    • mscrystal101 says:

      Hi Sue,
      You’re one of the first people I have heard of that has successfully treated and healed Lyme naturally. This is what I am in the process of doing now, currently in month 3. I have had a ton of symptoms already disappear or greatly improve! I would love to hear more about your story and treatment protocols…
      Crystal

      • Sylvia says:

        Hi, I would love to hear of anything you’re doing that has helped in.getting better. Thanks so much, Sylvia

    • Teness says:

      Sue, I have lyme and also frozen shoulder. Is there a way for us to email so you might share what you did to heal yourself? teness@teness.com

  6. Becky says:

    I have Lyme too (plus co-infections), and I have been fighting it for about 7 months now. I have been thinking about starting a blog, but I am keeping my diagnosis private from my peers and don’t want this private part of my life exposed. How do you feel about being public with your Lyme?

    Keep fighting! Bite back!

  7. Dawn says:

    I’m finding out quite a few Lymies I know also have Chiari 1 malformation. My whole family has LD and co-infections. (me, hubby, 3 kids and my twin sister).
    My husband just got diagnosed with Chiari Malformation and they say he needs surgery. After looking on Lyme message boards…I’m shocked at how many have this.

    • Dave says:

      Hi Lyme Chick
      I got lyme when I was 17 and im now 45 they didnt figure out what i had for 17yrs. now im in bad shape my organs are slowly shutting down i walk with a cane ive had a stroke and heart attack all from the lyme. My joints are shot migrains bad liver & gallbladder thanks for this site

  8. Mary Michael says:

    Lyme Chick I think that you are doing an awesome job! I use your sight for a lot of sites. I have been trying to start something in New Mexico because more and more people are becoming positive for Lyme Disease and they don’t know where to turn. The only support group that I have come across for New Mexico seems to be inactive. I wanted to know if you have any advise so that I can start something here. So far I have done research on sites and wrote my story but I don’t know where to go from here. Any suggestions? Thanks! Oh and again great job.

    Mary

  9. Ariella Abbott says:

    Wow, looking at this site really gives me the encouragement that I need to become better, and to not stress about the world around me, because that is the number one thing on my mind all the time. But the true fact is that you’re never going to heal if all your energy is going towards everyone and everything else- for me, that’s finishing my senior year in high school, working a lot so I can actually help my mom pay for everything, and letting my friends and significant other know that I’m still there… just sick, and in desperate need of understanding, and help. Honestly, looking at your site tonight, has made me decide to tell my boss tomorrow that I’m done proofing/editing audiobooks for a while… and I feel that’s the most valuable thing I’ve decided for my health of the recent. I’ve had this disease for 13 years now, and I was just diagnosed officially the other day. So thank you so much for your awesome videos and words of encouragement, you are truly an inspirational person!

  10. Alex Lyme says:

    hi, I’ve been reading your blog for a few months and I’m sincerely sorry to hear about what you’ve been going through. I believe I’m suffering from Lyme Disease for about 8 or 9 years now even though I don’t have a diagnose yet.

    Momentarily I hope I can raise the necessary funds to go and get a proper treatment in a German clinic which is quite expensive, as we all Lyme patients need a lot of money, I’m no different.

    Thanks a lot for the efforts and great work you’ve put in to have this great blog online.

    xx Alexandru Matei

  11. Hey Everyone, I’m 4 days into taking antibiotics and I’ve found a lot of really good information on here that is helping me with the process of what I’m going through and what to expect…some of which, to be completely honest is pretty scary! I’ll admit that I’m in denial mode at this point since all of my test results came back negative- not surprising- and my doctor is calling this a ‘theraputic trial.’ It’s just a lot to all take in at once. I’m having the herx reactions and I’m just miserable. However, it’s nice to know where to go when I need some information and need some support. Looking forward to implementing ways to lessen the herx that I found on one of the videos. Thanks and know that you DO make a difference, expecially for newbies like me 🙂

  12. jelleberg says:

    I’ve been fighting lyme for 6 years. Drs. have repeatedly told me….”There isn’t lyme in ND…It’s in Minnesota.” This has been a continuous fight. I was originally treated with the antibiotics, but I don’t believe I was on it long enough and the spirals were still active. The only remedy I’ve found that has worked for me is Cat’s Claw. If I go off the Cat’s Claw…I end up in the hospital. This is the only thing that has worked for me. I have spent thousands on tests and medicine. I went to the chiropractor when my back started swelling making it extremely painful to walk. He suggested the Homeopathic remedy. I of course was extremely skeptical, but was willing to try anything. Within 2 weeks, my swelling, headaches, brainfog, joint swelling, etc. subsided. The 2 times I have tried to go off of the Cat’s Claw, I ended up in the hospital. It doesn’t work for everyone….but hopefully it will give a few hope. I was bit by another tick 2 weeks ago, and the lyme is now in full-force again. I’m going to try to double my doses of the CC in hopes that I can tame this down yet again. I’m so thankful for your blog and all of the support. 🙂 -Sally (North Dakota)

  13. What a sweet creative honest kick-butt lymie you are, lyme chick. I just liked your facebook page via my new facebook page called the lyme whisperer I also have a blog at http://lymewhisperer.com as a creative and therapeutic outlet. I’m just getting started. I will definitely be visiting your face book and blog. I love it, thank you. I was diagnosed 3 yrs ago.

  14. Sylvia says:

    Thank you lyme chick! I’ve been sick for years and started IV antibiotics six simonths ago . I’m still pretty sick and searching for things that will help me to feel better. I came across your stite and its great!
    Thanks for putting a smile on my face.

  15. Alice Davidson says:

    Hi Lyme Chick. I am a newbie to your blog and liking it very much. A friend sent me your videp clip on my facebook page, which I really appreciated because I knew she didn’t “GET IT” whenever I discuss my Lyme issues. Now I feel she may have a better grasp on it, even if only a little. I wish my husband would watch and read more about the disease though. He watched Under Our Skin with me about 2 years ago and seemed interested, but it is true that when you show no outward symptoms people don’t know what is going on inside of us. I have a long story also, but will share it another time. For now I am reading what all of you wonderful people are saying. I wish each & every one of you/us some measure of genuine hope and wellness every day. I would love to know if anyone who reads Lyme Chick lives in the Hudson Valley in NY. God Bless……..

  16. ken says:

    Just found your blog and I find it very comforting to hear all the stories of Lyme, not because of the disease itself but because of the courage of those that are fighting it and actually having to do most of their own research to best such a dread disease. I don;t know for sure if I have it, I have taken the Western Blot and tested IND on band 41 (igm) and positive on 41 (igg). The Dr. (a llmd) says it may be that I do but he wasn’t sure either. My symptoms all started back in the early 90s I got a tick bite and then the panic attacks started coming and everywhere I went I had these attacks. Now my joints are very painful and I’ve been to the Rheumatologist and they can’t find anything wrong. I’ve pretty much been labeled a Hypochrondriac even had one doctor laughed at me and told me there is nothing wrong. Not sure where to turn to now but I keep searching.

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